Susac’s syndrome

Susac’s syndrome

Susac’s syndrome is a very rare autoimmune related disease, of still unknown etiology, and many persons who experience it do not display the bizarre symptoms named here.

Susac’s syndrome is a very rare autoimmune related disease, of still unknown etiology, and many persons who experience it do not display the bizarre symptoms named here. Often sufferers experience a personality change and develop bizarre and paranoid behavior. Their speech can be affected, such as the case of a female of late teens who suffered speech issues and hearing problems, and many experience unrelenting and intense headaches and migraines, some form of hearing loss, and impaired vision. The problem usually corrects itself, but this can take up to five years. In some cases, subjects can become confused. The syndrome usually affects women around the age of 18 years old, with female to male ratio of cases of 2:1.

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Patricia Barber
Patricia Barber
For the last 20 years, Pat has been helping patients and caregivers live better lives, advocate for change, and Virginia's "right hand" making sure the "i's" are dotted and the "t's" are crossed. She lives in Michigan and couldn't picture herself doing anything but helping the autoimmune community.

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